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Home > Get Involved > Contacts

FRAXA Regional Fundraising Contacts

No group near you? Find out how to start a new FRAXA local group to help us raise funds for a cure.

California - FRAXA Orange County
Andrea Shelly
Phone: 949 466-4521
Email: Aashelly@aol.com

California - San Diego
Nicole Schweizer
Phone: 619-697-6468
Website www.fragilexsandiego.org
Email: nicole@fragilexsandiego.org

Delaware - FRAXA Delaware
Jen Nardo
Phone: 302-234-7854
Email: jen9612@aol.com

Florida - Ft. Lauderdale
Ashley Falk
Phone: (954) 257-4322
Email: grad19@aol.com

Georgia
Sheree Davenport
Phone: 706-376-4915(home) or 706-436-3535(cell)
Email: Sheree_davenport@yahoo.com

Illinois
Holly Roos
Central Illinois Fragile X Resource Group
Email: roosfam@sbcglobal.net

Kentucky - Louisville
Ann and Lou Chaconas
Phone: (502) 254-9210
Email: alchaconas@insightbb.com

Massachusetts - FRAXA Headquarters
45 Pleasant St., Newburyport, MA 01950
Phone: (978) 462-1866
Fax: (978) 463-9985
Email: mbudek@fraxa.org
contact: Melissa Budek

Maryland - Fragile X Resource Center
Kristen Head
Phone: (301) 774-1069
Website www.mdfragilex.org
Email: kmhead129@aol.com

Michigan
Wendy Dillworth
Richland, MI
Phone: (269) 629-5890
Email: COMPOSE12@mei.net

Michigan - Southeast/Metro Detroit
Sally Nantais
Phone: (734) 282-7910
Email: sallyn423@wyan.org

Nebraska - Fragile X Families Association
Kelly Randels
Email: fragilexomahagroup@cox.net
Web: www.fragileXnebraska.org

Nebraska - FRAXA Western Nebraska
Megan Massey
Scottsbluff, NE
Phone: (308) 635-7109
Email: mmassey@actcom.net

New Jersey - FRAXA New Jersey
Kira and Denis Shmuler
Florham Park, NJ 07932
phone number 973-520-8511
Email: shmuler@optonline.net

New York - FRAXA New York City
Debbie Stevenson
Phone: (212) 828-1883
Email: StevensonD@vss.com

New York - FRAXA Hudson Valley
Ron and Amy Watkins
Phone: (845) 797-0846
Email: rwatkins@fraxa.org

North Carolina
Raleigh, NC
Phone: (919) 488-2326
Email: teresastr@aol.com
contact: Teresa and Steve Strom

Ohio - FRAXA Cincinnati
Melissa Courtney
Phone: 513-459-2176
Email: d.courtney@fuse.net
and Sara Bitter
Phone: 513-697-7979 or 937-232-2765
Email: sarabitter@yahoo.com

Ohio - Fragile X Alliance of Ohio - Cleveland
Phone: (440) 519-1517
Website: www.fragilexohio.org
Email: lesliebag@roadrunner.com
contact: Leslie Bagdasarian

Ohio - FRAXA Columbus
Judith Maloney
Worthington, OH
Phone: 614-635-1188
Email: clanmaloney@wowway.com

Each year the Maloneys celebrate FRAXA Fall Fling with an Irish pub night of fun, food and dancing. Give Judith a call to join in next year.

Pennsylvania - FRAXA Western Pennsylvania
Michele Cox
Phone: (724) 625 3092
Email: michelemcox@comcast.net

Pennsylvania - Philadelphia
Cristy Hollin
Phone: (610) 239-9075
Email: cbhollin@yahoo.com

Rhode Island and Southeast MA
Leslie Bobrowski
Email: labobrowsk@aol.com

Texas - Dallas/Plano
David Sturgell
Phone: (972) 599 0573
Email: dlsturgell@verizon.net

FRAXA Washington, DC
Lindee Norton
phone: (410) 353-0326
Email: fragilexva@comcast.net

To report links in need of updating, please email Melissa Budek



©1997-2009 FRAXA Research Foundation, 45 Pleasant St., Newburyport, MA 01950. Phone: 978-462-1866. Contact Us
Editor/writers: Katie Clapp, MS, and Michael Tranfaglia, MD. Updated 5/19/09. All rights reserved. Disclaimer Created by Icovia