FRAXA President, Katie Clapp, and Vice President, Mary Beth Busby, greet President Clinton at The White House.

The Children's Health Act of 2000 authorized funding for research on many children's diseases and disorders, including Fragile X. It authorized establishment of three Fragile X Research Centers. These centers would not exist if not for the efforts of Fragile X families and friends around the country.

The three Fragile X research centers are:

• University of North Carolina at Chapel Hill
  Don Bailey, Director


• Baylor University
  David Nelson, Director


• University of Washington
  Charles Laird, Director

 

Congress has responded enthusiastically to all of the letters, emails, phone calls, and meetings initiated by Fragile X Advocates around the country. Each year, Congress specifies in its Appropriations Committees' Reports how the Federal Budget for the coming year is to be spent. Each of the past five years, NIH has enhanced its research efforts on Fragile X. In addition to funding numerous separate grants, the NIH and FRAXA Research Foundation have partnered to fund of nine grants, which resulted from a special Request For Applications (RFA) of 2000.

The US House of Representatives passed a resolution in support of National Fragile X Research Day on October 5th. Each year FRAXA celebrates National Fragile X Research Day by holding Fall Fling for Research events around the U.S. Please join us if you can by holding or attending one of our events!

You can join FRAXA's Advocates by contacting David Busby (phone (202) 824-8820) or Katie Clapp (phone (978) 462-1866).

For more on our advocacy efforts please read the Report from Washington in our Newsletters