- About Fragile X
- About FRAXA
- Toward a Cure
- For Researchers
- Get Involved
- Ways to Give
Our goal is to find effective treatments and a cure for Fragile X. Our worldwide network is growing – and we need your help!
Click for clinical trials for fragile X patients, carriers, and other family members. You will be helping to find treatments and a cure for Fragile X.
Make a difference for Fragile X research. Look here for ideas and materials.
Connect with families in your area. Or consider leading a new chapter.
Join over 800 parents, aunts, teachers, siblings, and friends to share questions and tips about living with Fragile X
What is the FRAXA Listserv?
This virtual support and information exchange group is for everyone: parents, siblings, grandparents, other family members, educators, scientists, and friends. We are grateful to Emory University for sponsoring this listserv. FRAXA started the listserv in 1995 to serve the entire fragile X community.
To Join – email [email protected] with the following command in the body of your e-mail:
How To Leave (unsubscribe) – email [email protected] with the following command in the body of your e-mail:
Too many messages filling your inbox? The DIGEST sends you one batch message each day with all listserv messages included.
email [email protected] with the following command in the body of your e-mail message:
set FRAGILEX-L digest
You can also use the listserv and access help manuals through its web interface at http://listserv.cc.emory.edu/cgi-bin/wa
If you have any questions or need help accessing the listserv, please contact Sally Nantais, FRAXA Listserv Coordinator,
at [email protected]
If you have expertise with social media, graphic design, or Salesforce.com and would like to volunteer your talents to help FRAXA, please let us know!
FRAXA 2013 spending on programs was 93%, with just 7% spent on overhead. Audited Financials