- About Fragile X
- About FRAXA
- Toward a Cure
- For Researchers
- Get Involved
- Ways to Give
Our goal is to find effective treatments and a cure for Fragile X. Our worldwide network is growing – and we need your help!
Click for clinical trials for fragile X patients, carriers, and other family members. You will be helping to find treatments and a cure for Fragile X.
Make a difference for Fragile X research. Look here for ideas and materials.
Connect with families in your area. Or consider leading a new chapter.
Join over 800 parents, aunts, teachers, siblings, and friends to share questions and tips about living with Fragile X
What is the FRAXA Listserv?
This virtual support and information exchange group is for everyone: parents, siblings, grandparents, other family members, educators, scientists, and friends. We are grateful to Emory University for sponsoring this listserv. FRAXA started the listserv in 1995 to serve the entire fragile X community.
To Join – email [email protected] with the following command in the body of your e-mail:
How To Leave (unsubscribe) – email [email protected] with the following command in the body of your e-mail:
Too many messages filling your inbox? The DIGEST sends you one batch message each day with all listserv messages included.
email [email protected] with the following command in the body of your e-mail message:
set FRAGILEX-L digest
You can also use the listserv and access help manuals through its web interface at http://listserv.cc.emory.edu/cgi-bin/wa
If you have any questions or need help accessing the listserv, please contact Sally Nantais, FRAXA Listserv Coordinator,
at [email protected]
If you have expertise with social media, graphic design, or Salesforce.com and would like to volunteer your talents to help FRAXA, please let us know!