|All of FRAXA's Directors are parents of children affected by Fragile X |
| || Katie Clapp, MS - President and Co-Founder |
In 1994, after her son Andy was diagnosed with Fragile X, Katie, her husband Michael Tranfaglia, and a third parent, Kathy May, founded FRAXA. Katie has a BA in History from Harvard and a Masters degree in Computer Science from UNC Chapel Hill. She worked as a software engineer and instructor in computer science before FRAXA. She has won some prizes for her work with FRAXA, including an American Red Cross Community Hero award and a Women of Justice award from Massachusetts Lawyers Weekly.
| || Michael Tranfaglia, MD - Medical Director, Treasurer, Co-Founder |
Dr. Tranfaglia serves as Medical Director and Chief Scientific Officer of FRAXA, coordinating the Foundation’s research strategy and devoting his efforts to development of new therapeutic agents for Fragile X and related developmental disorders. He graduated from Harvard University with a BA in Biology and studied medicine at the University of North Carolina. After obtaining his MD, he stayed at UNC for Psychiatry residency training, and then entered private practice in 1991 in Newburyport, MA. Mike had specialized in the treatment of Anxiety Disorders prior to the diagnosis of his son with Fragile X in 1992 and subsequent founding of FRAXA.
| || Debbie Stevenson - Chairperson of the Board |
Debbie has worked to raise awareness of Fragile X through print, TV & Internet media, including James Watson's latest book on DNA. Debbie has organized four events and produced three video pieces for FRAXA. After graduating from Texas A&M University, she worked for ABC News "20/20" as a production secretary, and then went on to producing at CNBC Business News. In 2000 Debbie left to get involved with FRAXA.
Debbie is raising four children with husband Jeffrey, managing partner of private equity firm Veronis Suhler Stevenson. Their oldest child has Fragile X. Debbie runs FRAXA's New York City Chapter.
| || Sasa Zorovic, PhD - Vice President |
Sasa is the Co-Head of Bloomberg Fundamental Data, a division of Bloomberg, L.P. He received his AB in Applied Mathematics from Harvard, a PhD in Engineering-Economic Systems at Stanford,and an MBA from Stanford Business School. Sasa became involved with FRAXA in 2006 when his children were diagnosed with Fragile X and joined the Board of Directors in 2008.
| || Dean Clark - San Francisco Bay Area, CA |
Dean is an experienced technology professional (25 years) and currently a Director of Systems Engineering for VMware. Dean graduated from the California State University of Chico with a Bachelor of Science Degree in Computer Science.
Dean and his wife Stefanie have three children and they have been involved with FRAXA ever since their only son Lucas was diagnosed with Fragile X in 1999.
They and their family hosted a "Fix Fragile X" fundraiser that netted $160,000 for Fragile X research and currently drive an annual mail campaign for FRAXA.
| || Leslie Martini Eddy - Media Relations |
Leslie has been involved with FRAXA since her oldest daughter was diagnosed with Fragile X in 1996. Leslie has held events in the Boston area and works to raise awareness through print and social media. Leslie is a freelance writer with a Master’s in English Literature, and a B.S. in Journalism. Prior to her work with Fraxa, Leslie worked in media sales with Ziff Davis and Disney Publishing.
| || Ronald Watkins, Jr, CPA - LaGrangeville, NY |
Ron is a Certified Public Accountant and is the controller of two regional construction companies near Poughkeepsie, NY. He lives in LaGrangeville, NY, with his wife Amy and son Niklas (13). Ron became involved with FRAXA shortly after Niklas was diagnosed with Fragile X in 1999. Niklas was 16 months old at the time of his diagnosis. Ron and his wife Amy have been hosting an annual fundraiser every year since 2003. The Watkins head the Hudson Valley Chapter of FRAXA. Ron and Amy were drawn to FRAXA because of the dedication of FRAXA's scientific advisors, staff and board.