I love my life as Storm Tracker. It’s something I wanted to do from the time I was a kid, but there’s a
downside. I’ve watched hurricanes devastate whole parts of the country, and it’s tough to have to watch
as the lives of families are torn to pieces.
I can empathize with the emotional toll it takes on people.
My family lives in a category five state of crisis - the invisible storm felt by other families with children
who have Fragile X.
As the parent of two children born with Fragile X. I want everyone to know how important
it is to help move research forward - and fast!
Ben and Christina
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FRAXA-funded research is about to pay off for our kids - for all people with Fragile X and their families. Government approvals will
soon allow for human trials of medication that researchers agree will change the lives of our kids.
Don’t wait another minute! The faster we raise funds to support this research, the faster we’ll get
the job done.
Help me raise these much-needed funds.
Donate now
and spread the word.
Watch
my Public Service Announcement,
and ask your local cable service to get it on TV in your area. My family and I thank you very, very much.
