FRAXA Newsletters
Updates on research, advocacy, and FRAXA activities.

All About Fragile X

Multimedia site all about Fragile X including interviews with parents, a sister, and researchers.

FRAXA Listserv
Join our Listserv to find other families, ask questions, share tips and stories.

Article by Andrea Shelly, in OC Register

Me and the X-Man, by Paul Solotaroff, published in Men's Journal, National Magazine Award best essay finalist

ARCLIGHT Magazine, article about families who are living with Fragile X

NICHD Booklet - Families and Fragile X Syndrome
A comprehensive booklet on Fragile X, by the National Institute of Child Health and Human Development (NICHD).

Book in Spanish. Comprehensive book about Fragile X published by the Real Patronage on Handycap, the association of profesionales GIRMOGEN and the Spanish Federation Fragile X Syndrome.

Fragile X Information Center of the FPG Child Development Institute at the University of North Carolina

Fragile X - A to Z; A Guide for Families by Families
100+ page guide to help families cope with many daily challenges of living with a child or adult who has Fragile X. These anecdotes were provided by parents, grandparents, friends, and professionals who participate in the FRAXA Listserv.

Fragile X Special Issue
Here you will find abstracts and links to articles on Fragile X syndrome that were published in 2005 in the journal Genes, Brain and Behavior.

American College of Medical Genetics Recommendations
Recommendations of the American College of Medical Genetics (ACMG) to assist health care professionals in making decisions regarding genetic diagnosis and testing. October 2005.

National Center for Biotechnology Information
allows you to search public databases including OMIM, GenBank, and PubMed for the most up-to-date scientific information and publications on fragile X.