FRAXA Newsletters
Updates on research, advocacy, and FRAXA activities.
All About Fragile X
Multimedia site all about Fragile X including interviews with parents, a sister, and researchers.
FRAXA Listserv
Join our Listserv to find other families, ask questions, share tips and stories.
Article
by Andrea Shelly, in OC Register
Me and the X-Man, by Paul Solotaroff, published in
Men's Journal, National Magazine Award best essay finalist
ARCLIGHT Magazine, article about families who are living with Fragile X
NICHD Booklet - Families and Fragile X Syndrome
A comprehensive booklet on Fragile X, by the National
Institute of Child Health and
Human Development (NICHD).
Book in Spanish.
Comprehensive book about Fragile X published by the Real
Patronage on Handycap, the association of profesionales GIRMOGEN and
the Spanish Federation Fragile X Syndrome.
Fragile X Information Center
of the FPG Child Development Institute at the
University of North Carolina
Fragile X - A to Z; A Guide for Families by Families
100+ page guide to help families cope with many daily challenges of
living with a child or adult who has Fragile X. These anecdotes were
provided by parents, grandparents, friends, and professionals who participate in the
FRAXA Listserv.
Fragile X Special Issue
Here you will find abstracts and links to articles on Fragile X syndrome that were published
in 2005 in the journal Genes, Brain and Behavior.
American College of Medical Genetics Recommendations
Recommendations of the American College
of Medical Genetics (ACMG) to assist health care professionals
in making decisions regarding genetic diagnosis and testing. October 2005.
National Center for Biotechnology
Information
allows you to search public databases including
OMIM, GenBank, and PubMed for the most up-to-date scientific information
and publications on fragile X.