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Home > About Fragile X > Where to Learn More about Fragile X

Dr. Mike's psychiatry blog
More on research, medication, treatment, by FRAXA's founder and medical director, and fragile X parent, Dr. Mike Tranfaglia.

FRAXA Newsletters
Research, advocacy, fundraisers, and FRAXA activities & strategy.   (pdf files)
    2009     2008     2007     2006     2005     2004     2003     2002     2001     2000     1999     1998

All About Fragile X a multimedia site all about fragile X

Multimedia site all about Fragile X including interviews with parents, a sister, and researchers.


FRAXA Listserv
Join our Listserv to find other families, ask questions, share tips and stories.

Fragile gene switch impairs synapses December 2008: Comprehensive article on Fragile X and current research, in English, French, and German, by Roche Pharmaceuticals. Reprinted with permission from Roche.

Article April 2008: "Solving the Fragile X puzzle takes O.C. mom on unexpected journey" by Andrea Shelly, in OC Register

Me and the X-Man, by Paul Solotaroff, published in Men's Journal, National Magazine Award best essay finalist

ARCLIGHT Magazine, article about families who are living with Fragile X

NICHD Booklet - Families and Fragile X Syndrome
A comprehensive booklet on Fragile X, by the National Institute of Child Health and Human Development (NICHD).

Book in Spanish. Comprehensive book about Fragile X published by the Real Patronage on Handycap, the association of profesionales GIRMOGEN and the Spanish Federation Fragile X Syndrome.

Fragile X - A to Z; A Guide for Families by Families
100+ page guide to help families cope with many daily challenges of living with a child or adult who has Fragile X. These anecdotes were provided by parents, grandparents, friends, and professionals who participate in the FRAXA Listserv.

American College of Medical Genetics Recommendations
Recommendations of the American College of Medical Genetics (ACMG) to assist health care professionals in making decisions regarding genetic diagnosis and testing. October 2005.

National Center for Biotechnology Information
allows you to search public databases including OMIM, GenBank, and PubMed for the most up-to-date scientific information and publications on fragile X.



 
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Editor/writers: Katie Clapp, MS, and Michael Tranfaglia, MD. Updated 5/23/10. All rights reserved. Disclaimer Created by Dave Fullam and Icovia