Dr. Mike's psychiatry blog
More on research, medication, treatment, by
FRAXA's founder and medical director, and fragile
X parent, Dr. Mike Tranfaglia.
FRAXA Newsletters
Research, advocacy, fundraisers, and FRAXA activities
& strategy. (pdf files)
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
All About Fragile X
Multimedia site all about Fragile X including
interviews with parents, a sister, and researchers.
FRAXA Listserv
Join our Listserv to find other families, ask
questions, share tips and stories.
Fragile gene switch impairs synapses December
2008: Comprehensive article on Fragile X and
current research, in English, French, and German,
by Roche Pharmaceuticals. Reprinted with permission
from Roche.
Article April 2008: "Solving the Fragile
X puzzle takes O.C. mom on unexpected journey"
by Andrea Shelly, in OC Register
Me and the X-Man, by Paul Solotaroff,
published in
Men's Journal, National Magazine Award best
essay finalist
ARCLIGHT Magazine, article about
families who are living with Fragile X
NICHD Booklet - Families and Fragile X Syndrome
A comprehensive booklet on Fragile X, by the
National Institute of Child Health and Human
Development (NICHD).
Book in Spanish. Comprehensive
book about Fragile X published by the Real Patronage
on Handycap, the association of profesionales
GIRMOGEN and the
Spanish Federation Fragile X Syndrome.
Fragile X
- A to Z; A Guide for Families by Families
100+ page guide to help families cope with many
daily challenges of living with a child or adult
who has Fragile X. These anecdotes were provided
by parents, grandparents, friends, and professionals
who participate in the FRAXA Listserv.
American College of Medical Genetics Recommendations
Recommendations of the American College of Medical
Genetics (ACMG) to assist health care professionals
in making decisions regarding genetic diagnosis
and testing. October 2005.
National Center for Biotechnology Information
allows you to search public databases including
OMIM, GenBank, and PubMed for the most up-to-date
scientific information and publications on fragile
X.
