FRAXA Newsletters free (pdf files)
2008
2007
2006
Order online using PayPal, or
by phone, fax, or mail using this order form.
Spelling Love with an X: A Mother, a Son, and the Gene That Binds Them
$24.95
by Clare Dunsford
A memoir and poetic meditation on raising a child with a Fragile X.
Clare Dunsford is the mother of a twenty-one-year old son, J.P., who has Fragile X. Spelling Love with an X is the first literary memoir about living with Fragile X, their families, and treatment professionals.
DVD - "Closing in on a Cure" $9
This DVD includes three features:
1) "Fragile X - Hitting the Mark" is a powerful, emotional look
at families dealing with Fragile X, top researchers who are
working to find a cure, and FRAXA's efforts to support them. Produced by
Debbie Stevenson (11 minutes)
2) Public Service Announcement by storm tracker Jim Cantore from The Weather Channel (30 seconds)
3) "Fragile X" on Real Moms, Real Stories, Real Savvy (www.realsavvymoms.com) (10 minutes)
FRAXA CD $5
One CD contains our videos, 4
years of newsletters, a multimedia website all about Fragile X, articles, our brochure, and more.
Also included: the Medication Guide,
Fragile X - A to Z, and a Powerpoint presentation on Fragile X and FRAXA.
Fragile X Awareness Bands
These silicone rubber wristbands say "Cure Fragile X" and
"www.FRAXA.org." A favorite with teens and kids! Support
research and raise awareness at the same time
Order 1-4 wristbands at $3 each
Order 5 or more wristbands at $2 each
Fragile X Awareness Magnets
$3
These magnets are shaped like FRAXA's "X" and say "Cure Fragile X" and
"www.FRAXA.org." They look great on vehicles and are very effective for raising awareness of Fragile X. A fun
gift for everyone you know!
6x8 inches
FRAXA Logo
Gold-plated Lapel "X" Pin $10
Sport FRAXA's logo on jackets and sweaters.
X Stories; The Personal Side of Fragile X
$19.95
Edited by Charles Luckmann and Paul Piper, 2006
An anthology of riveting, uplifting, and sometimes humorous essays by parents, siblings, physicians, and therapists.
Dear Megan; Letters on Life, Love and Fragile X
$14.95
Written by Mary Beth Busby and Megan Massey, 2006
"Megan and Mary Beth are brave to share their deeply personal story of adversity, love, and triumph during their journey to discover the answers to Fragile X. This
is a wonderful book."
- U.S. Senator Chuck Hagel (Nebraska)
"Cure Fragile X" labels $4
Spread the word about Fragile X on every
letter and package you send. These 1.75
by .5 inch labels come 34 per sheet.
Available on white or clear labels.
Fragile X Family Cookbook -
Food eXtraordinaire
$13
Edited by Sally Nantais and Mary Beth Langan,
Parents
This red, white and black spiral cookbook includes
154 recipes from families, researchers, politicians,
and other eXtraordinary people from Australia to
New Hampshire to New Mexico.
"Ask me about Fragile X" Awareness Buttons 25 cents each
These buttons are 1.5 inch diameter with safety pin back.
FRAXA balloons 10 for $1
Teal balloons with the FRAXA logo in white
Medication Guide for Fragile X
$20
by Michael Tranfaglia, MD
Psychiatrist, Parent, FRAXA Medical Director
2004. This is a detailed guide to medications
commonly prescribed to help manage symptoms of Fragile X. This 100+ page
text will help parents understand the behavioral symptoms of fragile X and
how medications act on these symptoms. Reference pages rate each drug's effectiveness,
safety, convenience, and cost.
The guide is not a medical textbook and does not take the place of a physician.
It is designed to serve as background and reference to help parents talk with
their physicians. Also included on the FRAXA CD.
Fragile X - A to Z; A Guide for Families by Families
$15
Edited by Sally Nantais, Mary Beth Langan, and Wendy Dillworth
Parents
2006
This 100+ page guide is intended to help families cope with daily challenges of
living with a child or adult who has Fragile X. These anecdotes were
provided by parents, grandparents, friends, and professionals who participate in the
FRAXA Listserv, a free electronic mail support group dedicated to discussion of
Fragile X. Also included on the FRAXA CD.
Download free here or
My Brother has Fragile X $20
A 23-page booklet with color photos, written by 8-year-old Charles Stieger
about his brother. Suitable for young children and great for reading in an elementary
school classroom to educate children about what it's like to have Fragile X.
Educating Boys with Fragile X Syndrome
$10
By Gail Spiridigliozzi, Ph.D., et. al.
Duke University Medical Center
This 20-page guide is written for
parents, teachers and therapist to give specific strategies for education.
Fragile X Information Cards $5 per 75 cards
These business size cards are perfect for handing to people who know
little about fragile X, in the grocery store or wherever else a quick explanation
is needed. Laminated, durable cards.
FRAXA Knockout Mouse Tshirts $15
White 100% cotton, as shown; with "FRAXA" on the back.
FRAXA Logo Tshirts $15
White heavyweight 100% cotton, FRAXA teal and black logo on left chest.
Proceeds fund Fragile X research. You can buy here through PayPal or send your check
payable to FRAXA. We also accept major credit cards by fax, regular "snail mail", or phone.
Please use this
order form.
FRAXA will not sell or trade a
donor's personal information to any other entity unless we receive written permission from the donor.
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